Betsy is a Shire Patient Ambassador. Read her story here.

GATTEX® (teduglutide [rDNA origin]) for Injection is a prescription medicine used in adults with Short Bowel Syndrome (SBS) who need additional nutrition or fluids from intravenous (IV) feeding (parenteral support).
Betsy is a real patient
taking GATTEX.

BETSY'S STORY

Betsy’s journey to diagnosis

Betsy is a retiree who loves golfing, shopping and spending time with family and friends. She developed Crohn's disease and colitis some time ago and had a series of operations. Each resection took more of her large intestine and resulted in lots of scar tissue and a colostomy. But Betsy believes in being positive, so she made the most of her situation.

She and her husband traveled around the country and enjoyed early retirement. Unfortunately, her history of Crohn's and colitis caught up with her and she was rushed to the ER. Doctors discovered a blockage in her small intestine.

She had one surgery to clean up the scar tissue, and another one to piece together what was left of her small intestine—100 centimeters total. After surgery, her doctor diagnosed her with Short Bowel Syndrome and started her on Total Parenteral Nutrition (TPN).

Starting parenteral support (PS)

A feeding tube was inserted, and she went home with a Peripherally Inserted Central Catheter (PICC) in her arm. She infused three liters of fluid containing magnesium and potassium every day, which totaled about seven and a half hours.

At first, Betsy didn’t realize what kind of an impact it would have on her life. It didn’t take long for her to discover that her life would be centered around infusions and being hospitalized for infections from ports and PICC lines.

Learning about GATTEX®

After a good deal of research, she found a group of healthcare professionals who knew about SBS. Her doctors told her she might be a good candidate to try GATTEX since it’s a prescription medicine used in adults with Short Bowel Syndrome who need additional nutrition or fluids from IV feeding. They talked about the potential benefits and risks, including the risk of serious side effects like making abnormal cells grow faster and fluid overload. With her doctors, Betsy decided to start taking GATTEX.

What would a day off PS mean to you?

GATTEX was studied in a 6-month clinical trial of 86 adult SBS patients who needed to use
PS at least 3 times a week for at least 1 year. GATTEX helped the majority of patients:

Weekly PS volume
Reduce weekly PS volume

GATTEX 63% reduced PS by 20% or more

Placebo 30% reduced PS by 20% or more

Weekly PS
Get more day(s) off weekly PS

GATTEX 54% achieved at least 1 day off PS

Placebo 23% achieved at least 1 day off PS

This is Betsy's story.

More day(s) off the IV

Less time infusing suits me to a tee

Betsy is a real patient
taking GATTEX.

Betsy’s doctors reduced her IV fluid volume over time

Over time, and under the supervision of her doctors, GATTEX helped Betsy reduce the amount and number of days she was on IV fluid every week.

Of course, Betsy’s doctor still monitors her condition, including any side effects. This has just been Betsy’s experience. Just like SBS affects each patient a bit differently, so will different medications.

Betsy did experience fluid retention in her legs, and she discussed it with her healthcare team. Remember, it's always important to talk to your doctor about any side effects you may experience.

Spending less time infusing gives Betsy freedom to do the things she enjoys

As a retiree living a life of leisure, spending less time hooked up to an IV has given Betsy more freedom for the activities she enjoys, like golfing, cooking and shopping.

“I can’t change the fact that I have SBS or that I lost so much time tied to infusions. But what I can do is be thankful for today.”
SBS Connect logo

Want to talk with someone who takes GATTEX?

If you’re living with SBS or you care for someone who does, you aren’t alone. Schedule a call with a GATTEX Patient Ambassador through our mentor program, SBS Connect, or see if there’s a live event in an area near you.

Sign up for a call

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Important Safety Information: GATTEX may cause serious side effects including making abnormal cells grow faster, polyps in the colon (large intestine), blockage of the bowel (intestines), swelling (inflammation) or blockage of your gallbladder or pancreas, and fluid overload.
Click here for additional Important Safety Information.