Support for Your Patients
Hypothetical patient portrayal
Let your patients know that a network of support exists for people with Short Bowel Syndrome. Here are just a few of the organizations they might be interested in:
Facebook offers a number of support groups, including:
- National Organization for Rare Disorders, Inc
- Short Bowel Syndrome Foundation, Inc.
- The OLEY Foundation
- Global Genes
- Crohn’s & Colitis Foundation of America
- United Ostomy Association of America
- International Federation of Functional Gastrointestinal Disorders
NORD (National Organization for Rare Disorders, Inc.) has been empowering the rare disease community for more than 30 years.
This organization is dedicated to enriching the lives of those requiring home IV and tube feeding through education, outreach and networking.
Global Genes is one of the leading rare disease patient advocacy organizations in the world.
The Crohn's & Colitis Foundation of America (CCFA) is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn's Disease and ulcerative colitis.
We invite you to explore this website to find information about ostomies.
An educational resource for reliable digestive health knowledge, support, and assistance about functional gastrointestinal (GI) and motility disorders (FGIMDs).
This organization provides education, support and advocacy services for the short bowel community.
Some of the websites listed here allow for free exchange of information (for example, chat rooms and forums). Shire does not sponsor or endorse this free exchange of information. Shire is not responsible for the content or services provided by any websites that are not owned by Shire. Websites that are not owned by Shire are governed by their own polices and guidelines, including privacy policies.